Courtney Cox with Luke Langhor
at the Old Navy Rock &
EBowl event at Pinz |
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| Luke the brave is of and for Luke-O. He is a source of inspiration and love for all who have met him. Luke-O is smart, wise and has a smile that can melt any heart. Luke-O also suffers from Epidermolysis Bullosa, a genetic disease that you probably have never heard of. It is one of many rare genetic diseases that gets lost in the shadow of higher profile diseases that often receive the majority of funding and media spotlight. It is, however, no less devastating and cruel. Over time this website will grow to include information on how you can help along with updated information as it relates to Epidermolysis Bullosa and Luke-O's life. |
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BRINGING CARSON HOME
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Epidermolysis Bullosa (EB) Awareness Celebrities Chip In
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Long-shot stem-cell treatment gives two brothers a future |
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Thank you everyone who participated in this charity event
in an effort to find a cure for EB
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| Luke, Daisy and Sutter with Adam Sandler |
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| Luke, Daisy and Sutter with Courtney Cox and David Arquette |
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| Luke, Daisy and Sutter with Terri Seymour |
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| Read More:
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| To learn more about Epidermolysis Bullosa and how you can help
please visit DEBRA.ORG, MAKE A WISH Foundation , or EB Kids |
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